Abuse and care

, 149–150

Academic help

, 79

Adaptation

, 119–120

Adult carers

, 8

Age

, 26–27

Ambiguous loss

, 118–119

Anticipatory care

, 108–110

Anticipatory grief

, 118

Association of Directors of Adult Social Services (ADASS)

, 65–66

Attendance Allowance

, 71, 84

Attentiveness

, 160

Austerity measures

, 22–23

Autonomy

, 140–141, 155–156

Balanced mode

, 115

Black, Asian and Minority Ethnic Communities (BAME)

, 28

carers

, 53, 97

Bodywork

, 135

Care

, 106–109, 149, 180–182

arenas

, 130, 162, 166

carers

, 4–5

commitments

, 130–131

contract

, 34–35

ethic of care

, 125–127

ethicists

, 146–149

ethics

, 187–188

family and formal care

, 134–137

home

, 151–153

intensity

, 17–23

nature

, 124–125

needs

, 51

and relationships

, 176–177, 187, 189

typology

, 109

workers

, 1–2

Care Act (2014)

, 74, 84–85, 155–156, 187–188

Care-full system

, 171–172

Care-related expenditure

, 59

Care-related issues

, 149–153

abuse and care

, 149–150

care home

, 151–153

modern societies

, 153

Career care trajectory

, 130–131

Carer Addition (see Carer Premium)

Carer Element (see Carer Premium)

Carer Health and Well-Being

, 75–76, 90–91

Carer population

age

, 26–27

family members supporting relative with terminal illness

, 38–39

gender

, 25–26

key dimensions of

, 24–39

race

, 28

sexuality

, 28–38

socio-economic status

, 27

Carer Premium

, 70, 73

Carer-related polices

benefits for carers

, 83–84

carer health and well-being

, 90–91

carers and higher education

, 93

carers’ employment rights

, 94–97

over last twenty years

, 67

local authority support

, 84–90

outcomes of

, 82–97

young carers

, 91–93

Carer-related stress

, 115

Carer’s Allowance

, 48, 70, 81–84

Carers (see also Supporting carers)

, 1–3, 6, 20–21, 180–182

benefits of market for carers

, 159

care

, 23–24

complexities

, 6

conceptualised in policy and by services

, 138–142

COVID and

, 166

and financial hardship

, 46–48

and Higher Education

, 78–79, 93

identity

, 113–115

individuals and groups

, 179

issues

, 7

needs assessments

, 74

numbers

, 9–12

passports

, 79

population

, 3–4

promoting justice, fairness and rights for carers

, 159–162

of relatives with severe functional mental health problems

, 120–121

rights

, 189–192

social justice

, 146, 166

support

, 12–14

support and policy

, 100–102

Carers Act (1995)

, 67

Carers Action Plan (2018–2020)

, 81

Carers Trust

, 67, 79

Carers UK

, 67, 159

Carers’ Employment Rights

, 79–82

Caring

, 2, 20–21, 106–107, 132, 134, 180–182

BAME carers

, 53

on carers

, 41–42

carers and financial hardship

, 46–48

impact of caring on specific carer populations

, 52–62

complexities

, 6

dementia carers

, 59–60

employment and caring

, 42–46

family members supporting relative with terminal illness

, 61–62

former carers

, 60–61

health and well-being

, 48–52

landscape

, 179

nature

, 124–125

older carers

, 58–59

role

, 113–115

roles and tasks

, 4

sandwich carers

, 53–54

as temporal journey

, 108–112

young carers

, 54–58

Children and Families Act (2014)

, 76, 80–81

Chronic obstructive pulmonary disease (COPD)

, 121–122

Chronic sorrow

, 120

Closing down the caring time

, 112

Co-caring

, 141

Co-resident carers

, 21

Collective responsibility

, 148

Commentators

, 6–7, 12

Commissioning

, 136–137

Competence

, 160

Conceptualising care

, 108

Constructing life post-caring

, 112

Consumer choice

, 155–156

Contestation

, 2–3

Convention on the Rights of Persons with Disabilities (CRPD)

, 168–169

COVID pandemic

, 7–8, 123–124, 127–128, 166

Critical care theory

, 127–128

Cruse Bereavement Support

, 123–124

Cultural variation

, 2–3

Cutbacks in services

, 65–66

Definitional inconsistency

, 2–3

Dementia

, 121–122

care

, 116–124

carers

, 35–37, 59–60, 98–99

grief

, 118–120

Democracy

, 184–187

Direct payments

, 157–158

Disability Living Allowance

, 51–52

Distance carers

, 21

Distinctive post-caring trajectory

, 112

Distributive justice

, 147–148

Dyadic carers

, 13

Effective re-emergence

, 119–120

Effective support

, 101–102

Emotional labour

, 117–118, 176

Emotions

, 132–134

Employers for carers (EfC)

, 94

Employment

and caring

, 42–46

rights

, 147–148

Employment Support Allowance (ESA)

, 70, 73

Empowerment

, 189–192

End-of-life carers

, 121–124

Equality

, 147–148

Equality Act

, 81, 2010

Ethic of care

, 125–127

European Convention on Human Rights

, 169

Expectations

, 132–134

Fairness

, 147–148

Familial care relationships

, 13

Family care

, 1, 27–28, 107, 133–134, 138, 179

Family carers

, 106, 122–123

Family caring in UK

, 9

care intensity

, 17–23

carer numbers

, 9–12

carers care

, 23–24

carers support

, 12–14

key dimensions of carer population

, 24–39

reasons for need for care

, 14–17

Family changes over time

, 14

Family members supporting relative with terminal illness

, 38–39, 61–62, 100

Feelings

, 133

Filial carers

, 21

Financial hardship

, 46–48

Financial support

, 79

Formal care

, 134–137

Former carers

, 37, 60–61, 99

Gender

, 25–26

Grief

, 118

Health

, 48–52

Health and Care Act (2022)

, 82

Health and well-being support

, 79

Higher Education

, 78–79, 93

Human rights

, 168–171

Immersed carer

, 115

Inequalities

, 162–166

Injustices

, 162–166

Instrumental care

, 108–111

Integrated mode

, 115

Intensive carers

, 111

Interdependence

, 125

Inverse care law

, 174

Job Seekers Allowance (JSA)

, 70, 73

Justice

, 149

Language of policy

, 158

Legacies of caring

, 60

LGBTQ+ -, Lesbian, gay, bisexual, transgender, intersex, queer/ questioning, asexual and other terms (such as non-binary and pansexual)

, 28–29

Life course

approach

, 131

and family care

, 129–132

Liminality

, 119–120

Local authority support

, 74–75

Local support networks

, 65

Loss

, 118, 120

Morality

, 186–187

National Health Service (NHS)

, 5

National Institute for Health and Care Excellence (NICE)

, 75–76, 121–122

National Living Wage (NLW)

, 44, 83–84

National Minimum Wage

, 44, 83–84

Neoliberalism

, 138

Not be in education, employment or training (NEET)

, 56

Older carers

, 16–17, 34, 58–59, 98

Organisational/managerial labour

, 117–118

Paid carers

, 1–2, 6–7

Palliative care

, 121, 123–124

Palliative carers

, 121–124

Parents

, 2

Personalisation

, 96

Physical labour

, 117–118

Physical self

, 118–119

Political

, 155–159

ethic of care

, 127–128, 153, 155

Politics

, 186–187

Population ageing

, 15–16, 27

Post-caring void

, 112

Preventive care

, 108–110

Proper locus of care

, 185

Proportionality

, 147–148

Protective/preservative care

, 108–110

Psychological morbidity carers

, 51–52

Psychological self

, 118–119

Public services

, 27–28

Pupil Premium funding

, 76

Race

, 28

Re-emergence

, 119–120

Reciprocal care

, 110–111

Recognition

, 172–173

Reconstructive care

, 108–110

Redistribution

, 172–173

Relational autonomy

, 140–141

Relationships

, 176–177

Renewed notion of social justice

, 149

Respite care

, 140–141

Responsibility

, 160

Responsiveness

, 160

Rights

, 168, 172–173

Rights for carers

, 145–146

Sandwich carers

, 30–31, 53–54, 97–98

Scottish Government

, 81–82

Self-directed care

, 155–156

Self-funders

, 23

Separation

, 119–120

Serial care relationships

, 130–131

Services

, 147–148

Severe Disability Premium (SDP)

, 92

Sexuality

, 28–38

Sharing memories

, 118–119

Site of care

, 128–129

Social citizenship

, 145–146, 166, 168

Social identity theory

, 113

Social investment approach

, 159

Social isolation

, 60–61

Social justice

, 7, 145–146, 148, 166, 184, 187

carers and

, 146

Social model of disability

, 124–125

Social primary goods

, 147

Social protection

, 182–184

Social risk

, 160–162, 182, 184

Socio-economic status

, 27

Solidarity

, 160

Supervisory care

, 108–109

Supporting carers

, 65

benefits for carers

, 70–82

carer support and policy

, 100–102

carer-related polices over last twenty years

, 67

outcomes of carer-related polices

, 82–97

support for carer populations

, 97–100

Sustainable model

, 186

System restructure dimensions

, 173–176

Unitary process

, 113–114

United Nations (UN)

, 168–169

Universal Credit (UC)

, 70, 73, 92

Unpaid care

, 10–11

Variability

, 174

Welfare benefits

, 147–148

Welfare conditionality

, 156

Well-being

, 48–52

Welsh Government

, 81–82

Work and Families Act (2006)

, 80–81

Worker skills

, 136–137

Working carers

, 29–30

Working Tax Credit

, 83–84

Young Carer Ambassador Programme

, 77

Young carers

, 31, 54, 58, 76, 78, 91, 93

Young Carers Health Champion Programme

, 78

Young Carers Schools programme

, 76–77