Index
Alisoun Milne
(University of Kent, UK)
Mary Larkin
(The Open University, UK)
ISBN: 978-1-80043-349-6, eISBN: 978-1-80043-346-5
Publication date: 4 October 2023
This content is currently only available as a PDF
Citation
Milne, A. and Larkin, M. (2023), "Index", Family Carers and Caring (Society Now), Emerald Publishing Limited, Leeds, pp. 233-239. https://doi.org/10.1108/978-1-80043-346-520231008
Publisher
:Emerald Publishing Limited
Copyright © 2023 Alisoun Milne and Mary Larkin. Published under exclusive licence by Emerald Publishing Limited
INDEX
Abuse and care
, 149–150
Academic help
, 79
Adaptation
, 119–120
Adult carers
, 8
Age
, 26–27
Ambiguous loss
, 118–119
Anticipatory care
, 108–110
Anticipatory grief
, 118
Association of Directors of Adult Social Services (ADASS)
, 65–66
Attendance Allowance
, 71, 84
Attentiveness
, 160
Austerity measures
, 22–23
Autonomy
, 140–141, 155–156
Balanced mode
, 115
Black, Asian and Minority Ethnic Communities (BAME)
, 28
carers
, 53, 97
Bodywork
, 135
Care
, 106–109, 149, 180–182
arenas
, 130, 162, 166
carers
, 4–5
commitments
, 130–131
contract
, 34–35
ethic of care
, 125–127
ethicists
, 146–149
ethics
, 187–188
family and formal care
, 134–137
home
, 151–153
intensity
, 17–23
nature
, 124–125
needs
, 51
and relationships
, 176–177, 187, 189
typology
, 109
workers
, 1–2
Care Act (2014)
, 74, 84–85, 155–156, 187–188
Care-full system
, 171–172
Care-related expenditure
, 59
Care-related issues
, 149–153
abuse and care
, 149–150
care home
, 151–153
modern societies
, 153
Career care trajectory
, 130–131
Carer Addition (see Carer Premium)
Carer Element (see Carer Premium)
Carer Health and Well-Being
, 75–76, 90–91
Carer population
age
, 26–27
family members supporting relative with terminal illness
, 38–39
gender
, 25–26
key dimensions of
, 24–39
race
, 28
sexuality
, 28–38
socio-economic status
, 27
Carer Premium
, 70, 73
Carer-related polices
benefits for carers
, 83–84
carer health and well-being
, 90–91
carers and higher education
, 93
carers’ employment rights
, 94–97
over last twenty years
, 67
local authority support
, 84–90
outcomes of
, 82–97
young carers
, 91–93
Carer-related stress
, 115
Carer’s Allowance
, 48, 70, 81–84
Carers (see also Supporting carers)
, 1–3, 6, 20–21, 180–182
benefits of market for carers
, 159
care
, 23–24
complexities
, 6
conceptualised in policy and by services
, 138–142
COVID and
, 166
and financial hardship
, 46–48
and Higher Education
, 78–79, 93
identity
, 113–115
individuals and groups
, 179
issues
, 7
needs assessments
, 74
numbers
, 9–12
passports
, 79
population
, 3–4
promoting justice, fairness and rights for carers
, 159–162
of relatives with severe functional mental health problems
, 120–121
rights
, 189–192
social justice
, 146, 166
support
, 12–14
support and policy
, 100–102
Carers Act (1995)
, 67
Carers Action Plan (2018–2020)
, 81
Carers Trust
, 67, 79
Carers UK
, 67, 159
Carers’ Employment Rights
, 79–82
Caring
, 2, 20–21, 106–107, 132, 134, 180–182
BAME carers
, 53
on carers
, 41–42
carers and financial hardship
, 46–48
impact of caring on specific carer populations
, 52–62
complexities
, 6
dementia carers
, 59–60
employment and caring
, 42–46
family members supporting relative with terminal illness
, 61–62
former carers
, 60–61
health and well-being
, 48–52
landscape
, 179
nature
, 124–125
older carers
, 58–59
role
, 113–115
roles and tasks
, 4
sandwich carers
, 53–54
as temporal journey
, 108–112
young carers
, 54–58
Children and Families Act (2014)
, 76, 80–81
Chronic obstructive pulmonary disease (COPD)
, 121–122
Chronic sorrow
, 120
Closing down the caring time
, 112
Co-caring
, 141
Co-resident carers
, 21
Collective responsibility
, 148
Commentators
, 6–7, 12
Commissioning
, 136–137
Competence
, 160
Conceptualising care
, 108
Constructing life post-caring
, 112
Consumer choice
, 155–156
Contestation
, 2–3
Convention on the Rights of Persons with Disabilities (CRPD)
, 168–169
COVID pandemic
, 7–8, 123–124, 127–128, 166
Critical care theory
, 127–128
Cruse Bereavement Support
, 123–124
Cultural variation
, 2–3
Cutbacks in services
, 65–66
Definitional inconsistency
, 2–3
Dementia
, 121–122
care
, 116–124
carers
, 35–37, 59–60, 98–99
grief
, 118–120
Democracy
, 184–187
Direct payments
, 157–158
Disability Living Allowance
, 51–52
Distance carers
, 21
Distinctive post-caring trajectory
, 112
Distributive justice
, 147–148
Dyadic carers
, 13
Effective re-emergence
, 119–120
Effective support
, 101–102
Emotional labour
, 117–118, 176
Emotions
, 132–134
Employers for carers (EfC)
, 94
Employment
and caring
, 42–46
rights
, 147–148
Employment Support Allowance (ESA)
, 70, 73
Empowerment
, 189–192
End-of-life carers
, 121–124
Equality
, 147–148
Equality Act
, 81, 2010
Ethic of care
, 125–127
European Convention on Human Rights
, 169
Expectations
, 132–134
Fairness
, 147–148
Familial care relationships
, 13
Family care
, 1, 27–28, 107, 133–134, 138, 179
Family carers
, 106, 122–123
Family caring in UK
, 9
care intensity
, 17–23
carer numbers
, 9–12
carers care
, 23–24
carers support
, 12–14
key dimensions of carer population
, 24–39
reasons for need for care
, 14–17
Family changes over time
, 14
Family members supporting relative with terminal illness
, 38–39, 61–62, 100
Feelings
, 133
Filial carers
, 21
Financial hardship
, 46–48
Financial support
, 79
Formal care
, 134–137
Former carers
, 37, 60–61, 99
Gender
, 25–26
Grief
, 118
Health
, 48–52
Health and Care Act (2022)
, 82
Health and well-being support
, 79
Higher Education
, 78–79, 93
Human rights
, 168–171
Immersed carer
, 115
Inequalities
, 162–166
Injustices
, 162–166
Instrumental care
, 108–111
Integrated mode
, 115
Intensive carers
, 111
Interdependence
, 125
Inverse care law
, 174
Job Seekers Allowance (JSA)
, 70, 73
Justice
, 149
Language of policy
, 158
Legacies of caring
, 60
LGBTQ+ -, Lesbian, gay, bisexual, transgender, intersex, queer/ questioning, asexual and other terms (such as non-binary and pansexual)
, 28–29
Life course
approach
, 131
and family care
, 129–132
Liminality
, 119–120
Local authority support
, 74–75
Local support networks
, 65
Loss
, 118, 120
Morality
, 186–187
National Health Service (NHS)
, 5
National Institute for Health and Care Excellence (NICE)
, 75–76, 121–122
National Living Wage (NLW)
, 44, 83–84
National Minimum Wage
, 44, 83–84
Neoliberalism
, 138
Not be in education, employment or training (NEET)
, 56
Older carers
, 16–17, 34, 58–59, 98
Organisational/managerial labour
, 117–118
Paid carers
, 1–2, 6–7
Palliative care
, 121, 123–124
Palliative carers
, 121–124
Parents
, 2
Personalisation
, 96
Physical labour
, 117–118
Physical self
, 118–119
Political
, 155–159
ethic of care
, 127–128, 153, 155
Politics
, 186–187
Population ageing
, 15–16, 27
Post-caring void
, 112
Preventive care
, 108–110
Proper locus of care
, 185
Proportionality
, 147–148
Protective/preservative care
, 108–110
Psychological morbidity carers
, 51–52
Psychological self
, 118–119
Public services
, 27–28
Pupil Premium funding
, 76
Race
, 28
Re-emergence
, 119–120
Reciprocal care
, 110–111
Recognition
, 172–173
Reconstructive care
, 108–110
Redistribution
, 172–173
Relational autonomy
, 140–141
Relationships
, 176–177
Renewed notion of social justice
, 149
Respite care
, 140–141
Responsibility
, 160
Responsiveness
, 160
Rights
, 168, 172–173
Rights for carers
, 145–146
Sandwich carers
, 30–31, 53–54, 97–98
Scottish Government
, 81–82
Self-directed care
, 155–156
Self-funders
, 23
Separation
, 119–120
Serial care relationships
, 130–131
Services
, 147–148
Severe Disability Premium (SDP)
, 92
Sexuality
, 28–38
Sharing memories
, 118–119
Site of care
, 128–129
Social citizenship
, 145–146, 166, 168
Social identity theory
, 113
Social investment approach
, 159
Social isolation
, 60–61
Social justice
, 7, 145–146, 148, 166, 184, 187
carers and
, 146
Social model of disability
, 124–125
Social primary goods
, 147
Social protection
, 182–184
Social risk
, 160–162, 182, 184
Socio-economic status
, 27
Solidarity
, 160
Supervisory care
, 108–109
Supporting carers
, 65
benefits for carers
, 70–82
carer support and policy
, 100–102
carer-related polices over last twenty years
, 67
outcomes of carer-related polices
, 82–97
support for carer populations
, 97–100
Sustainable model
, 186
System restructure dimensions
, 173–176
Unitary process
, 113–114
United Nations (UN)
, 168–169
Universal Credit (UC)
, 70, 73, 92
Unpaid care
, 10–11
Variability
, 174
Welfare benefits
, 147–148
Welfare conditionality
, 156
Well-being
, 48–52
Welsh Government
, 81–82
Work and Families Act (2006)
, 80–81
Worker skills
, 136–137
Working carers
, 29–30
Working Tax Credit
, 83–84
Young Carer Ambassador Programme
, 77
Young carers
, 31, 54, 58, 76, 78, 91, 93
Young Carers Health Champion Programme
, 78
Young Carers Schools programme
, 76–77
- Prelims
- 1 Introduction
- 2 Profile of Family Caring in the UK: Patterns and Trends
- 3 Impact and Consequences of Caring on Carers
- 4 Supporting Carers
- 5 Conceptualising and Understanding Care and Caring
- 6 Social Justice, Social Citizenship and Rights for Carers
- 7 Final Reflections: Looking Forward
- Glossary of Key Terms
- References
- Index