Prelims

Half Title Page

Disability in the Time of Pandemic

Series Title Page

Research in Social Science and Disability

Series Editors: Sharon N. Barnartt and Barbara M. Altman

Recent Volumes:

Title Page

Research in Social Science and Disability Volume 13

Disability in the Time of Pandemic

Edited by

Allison C. Carey

Shippensburg University, USA

Sara E. Green

University of South Florida, USA

And

Laura Mauldin

University of Connecticut, USA

United Kingdom – North America – Japan – India – Malaysia – China

Copyright Page

Emerald Publishing Limited

Howard House, Wagon Lane, Bingley BD16 1WA, UK

First edition 2023

Editorial matter and selection © 2023 Allison C. Carey, Sara E. Green and Laura Mauldin.

Individual chapters © 2023 The Authors.

Published under exclusive licence by Emerald Publishing Limited.

Reprints and permissions service

Contact: permissions@emeraldinsight.com

No part of this book may be reproduced, stored in a retrieval system, transmitted in any form or by any means electronic, mechanical, photocopying, recording or otherwise without either the prior written permission of the publisher or a licence permitting restricted copying issued in the UK by The Copyright Licensing Agency and in the USA by The Copyright Clearance Center. Any opinions expressed in the chapters are those of the authors. Whilst Emerald makes every effort to ensure the quality and accuracy of its content, Emerald makes no representation implied or otherwise, as to the chapters' suitability and application and disclaims any warranties, express or implied, to their use.

British Library Cataloguing in Publication Data

A catalogue record for this book is available from the British Library

ISBN: 978-1-80262-140-2 (Print)

ISBN: 978-1-80262-139-6 (Online)

ISBN: 978-1-80262-141-9 (Epub)

ISSN: 1479-3547 (Series)

List of Figures

List of Tables

About the Contributors

Jihan Abbas, PhD, is an independent researcher and lecturer working with diverse organizations including government departments, the non-profit sector, community-based organizations, unions, startup companies, and universities. She has been involved in the disability movement for several years and has extensive advocacy and professional experiences related to access, exclusion, and equality (Canada).

Heather M. Aldersey, PhD, is an Associate Professor (Queen's National Scholar), Canada Research Chair (Tier 2), and the Director of the International Centre for the Advancement of Community Based Rehabilitation in the School of Rehabilitation Therapy at Queen's University in Canada. Her research focuses on family support in disability, community-based rehabilitation, and disability-inclusive development.

Pamela Block, PhD, is a Professor of Anthropology at Western University (Canada). She is a Fellow of the Society for Applied Anthropology and is a former president of the Society for Disability Studies (2009–2010). Her books include co-authored Allies and Obstacles: Disability Activism and Parents of Children with Disabilities (2020) and co-edited Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability (2016).

Madeline Burghardt has a PhD in Critical Disability Studies from York University and is the author of Broken: Institutions, Families, and the Construction of Intellectual Disability. She teaches at York and Western Universities (Canada). Her research interests include geopolitical constructions and histories of difference and disability. Madeline is a long-time friend and contributor to the creative arts group Sol Express.

Allison C. Carey, PhD, is a Professor of Sociology and Chair of the Department of Sociology & Anthropology at Shippensburg University in Pennsylvania (USA). She is co-author of Allies and Obstacles: Disability Activism and Parents of Children with Disabilities (2020) and author of On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth Century America (2009). She has co-edited several volumes, including two other volumes of RSSD.

Lei Chai is a PhD candidate in Sociology at the University of Toronto, Canada. His research focuses on health and mental health, work and family, and social stratification.

Jayajit Chakraborty, PhD, is a Professor in the Department of Sociology and Anthropology, and the Founding Director of the Socio-Environmental and Geospatial Analysis Lab at the University of Texas at El Paso, USA. He is currently serving as a member of the US Environmental Protection Agency (EPA) Science Advisory Board and the inaugural EPA Environmental Justice Science Committee.

Colleen M. Davison, PhD, is an Associate Professor of Public Health Sciences and Global Development Studies and Associate Dean for Equity and Social Accountability at Queen's University, Kingston, Canada. Her research interests include equity-oriented research methodologies, child and adolescent health and rights, and social justice in the realms of public health, global health and health sciences training.

Nelly De Arcos was an undergraduate student at Brown University (USA), majoring in Education Studies and Psychology at the time of writing this manuscript. She is now completing her master's degree in School Psychology at Loyola Marymount University.

Kim Fernandes is a joint doctoral candidate in Anthropology and Human Development at the University of Pennsylvania (USA). They are interested in questions of disability, data, and governance in South Asia. Their dissertation is focused on the processes and practices of identifying and enumerating disability in Delhi, India.

Rachel Elizabeth Fish, PhD, is an Assistant Professor in the Department of Teaching & Learning at New York University, USA. Her research examines racialized and gendered constructions of disability and giftedness, and how these processes relate to educational inequality.

Grace L. Francis, PhD, is an Associate Professor of Special Education at George Mason University, USA. Her research interests include transition to adulthood and family support policies and practices that result in a high quality of life for individuals with significant support needs.

Olivia Friend was an undergraduate at Brown University (USA), majoring in Education Studies, at the time of writing this manuscript. She is now pursuing a teaching career in Greenwich Connecticut as a fourth grade teacher. In addition, she is working toward her master's degree in elementary and special education at Bank Street College of Education in New York City.

Sharon Gabison, PhD, is an Assistant Professor in the Department of Physical Therapy at the University of Toronto, Canada, and an Affiliate Scientist at the KITE Research Institute at Toronto Rehabilitation Institute – University Health Network. Her research is focused on the development and evaluation of tools and technologies to support caregivers. At the time of the study, she was a representative of Family Alliance Ontario.

Navjit Gaurav is a Rehabilitation Science doctoral student at Queen's University, Canada. He has extensive community work experience in the informal settlements of Mumbai's M-East ward. His research aims to explore the Community schools' design in Indian slums to promote meaningful participation and social interaction of children with disabilities.

Ewa Giermanowska is an Associate Professor and Sociologist at the Institute of Applied Social Sciences at the University of Warsaw, Poland, and the author of expert analyses for government, NGOs, and scientific publications dealing with disability and employment. She is a member of the Polish Sociological Association, Section of Sociology of Work, and Section of Sociology of Disabilities.

Robert Gould, PhD, is an Associate Clinical Professor in the Department of Disability and Human Development and is the Director of Research for the Great Lakes ADA Center at the University of Illinois at Chicago, USA. His research interests lie in social policy, employment, knowledge translation, rights, and social justice.

Valérie Grand'Maison is a doctoral candidate in the Department of Sociology and Anthropology at the University of Guelph, Canada. Her areas of research include violence against women and girls with disabilities, feminist disability activism, and intersectionality.

Sara E. Green, PhD, is Professor and Chair of the Department of Sociology and Interdisciplinary Social Sciences at the University of South Florida, USA, past chair and career award recipient of the American Sociological Association (ASA) Section on Disability & Society, and past co-chair of the ASA Committee on the Status of Persons with Disabilities in Sociology. Her work focuses on narrative constructions of disability, stigma, and disability in family life.

Andy Holmes is a PhD student in Sociology at the University of Toronto, Canada. His research focuses on sexuality, social movements, and media framing of contemporary LGBTQ2+ issues.

Srishti Jaitely is a Counsellor-Programme Manager with M-iCall Psycho-Social Helpline under the Transforming M-ward Project of TISS, Mumbai. Her areas of interest include mental health and well-being, implementing community-led and community-based interventions with marginalized groups, the interaction of urban local bodies with informal settlements in public health and education.

Julia Jansen-van Vuuren is a doctoral candidate in the School of Rehabilitation Therapy at Queen's University in Kingston, Canada. Her research focuses on family quality of life for families of children with disabilities in low-income contexts, specifically in Ethiopia.

Robin Jones is the Director of the Great Lakes ADA Center in the Department of Disability and Human Development at the University of Illinois at Chicago, USA. Her areas of expertise include employment, architectural accessibility, community integration, educational accommodations and accessibility of information technology.

Michelle Maroto, PhD, is an Associate Professor of Sociology at the University of Alberta, Canada. Her research interests include social stratification, gender and family, race and ethnicity, labor and credit markets, and disability studies.

Laura Mauldin, PhD, is Associate Professor of Women's, Gender, and Sexuality Studies at the University of Connecticut, USA. She is the author of Made to Hear: Cochlear Implants and Raising Deaf Children (University of Minnesota Press, 2016) which won honorable mention for the Outstanding Publication Award from the American Sociological Association's Disability in Society Section. Her work appears in journals such as Journal of Health and Social Behavior, Social Science and Medicine, Gender & Society and others. She is currently working on a second book about spousal caregivers.

Joana Milan Lorandi is an undergraduate student in Psychology at the Universidade Federal de Santa Catarina, Brazil, and an Assistant Researcher at the Western University in Canada through the Emerging Leaders of America program (ELAP). Her areas of research include disability studies in relation to intersectional feminist studies and gender-based violence.

Courtney Mullin is a doctoral candidate in the Department of Disability and Human Development at the University of Illinois at Chicago, USA. Her research focuses on disability inclusion and workplace diversity, equity, and inclusion strategies, knowledge translation, and social policy.

Sarah Parker Harris, PhD, is a Professor in the Department of Disability and Human Development at the University of Illinois at Chicago, USA. Her research areas of focus broadly touch on disability policy and law, social entrepreneurship and disability, knowledge translation, and international human rights and social justice.

David Pettinicchio, PhD, is an Associate Professor of Sociology and affiliated faculty in the Munk School of Global Affairs and Public Policy at the University of Toronto, Canada. He is the author of Politics of Empowerment and co-editor of the Oxford Handbook of the Sociology of Disability. His research lies at the intersection of policy, politics, inequality, health, and disability.

Laura Pin, PhD, is an Assistant Professor in the Department of Political Science at Wilfrid Laurier University, Canada. Her research examines how social inequality intersects with policy-governance regimes and how political scientists can use community-engaged research to understand participation in public policy beyond formal political institutions.

Mariola Racław is an Associate Professor and Sociologist at the Institute of Applied Social Sciences at the University of Warsaw, Poland. She is a member of the Government Population Council and the Co-Founder and Vice-President of the Sociology of Disabilities Section of the Polish Sociological Association.

David Enrique Rangel, PhD, is an Assistant Professor of Education at Brown University, USA. His research examines the relationship between education and social inequality, with emphasis on the Latinx experience in the United States.

Kathryn Reinders is a doctoral student in the Social Practice and Transformational Change program at the University of Guelph, Canada. Her areas of research include sovereignty, public policy, human rights, and political action.

Danielle Roberts is a master's student in Occupational Therapy in the School of Rehabilitation Therapy at Queen's University, Kingston, Canada. Danielle is interested in occupational engagement for people with disabilities and barriers that are present internationally.

Tanushree Sarkar is a doctoral candidate in Community Research and Action at the Peabody College of Education and Human Development, Vanderbilt University (Nashville, USA). Her research interests include inclusive and social justice pedagogy, teacher agency, and education policy for equity and inclusion in the Global South.

Deborah Stienstra, PhD, holds the Jarislowsky Chair in Families and Work at the University of Guelph, the Director of the Live Work Well Research Centre and Professor of Political science (Canada). Her research explores the intersections of disabilities, gender, childhood, and Indigenousness, identifying barriers to, and possibilities for, engagement and transformative change.

Dorota Szawarska is an Anthropologist working at the Institute of Applied Social Sciences at the University of Warsaw, Poland. Currently, she is engaged in a research project being carried out at Warsaw University Policies for independent living in Poland and Norway, funded by a Norway grant.

List of Contributors