Index
ISBN: 978-1-83909-144-5, eISBN: 978-1-83909-143-8
ISSN: 1479-3547
Publication date: 25 November 2019
This content is currently only available as a PDF
Citation
(2019), "Index", New Narratives of Disability (Research in Social Science and Disability, Vol. 11), Emerald Publishing Limited, Leeds, pp. 277-288. https://doi.org/10.1108/S1479-354720190000011030
Publisher
:Emerald Publishing Limited
Copyright © 2020 Emerald Publishing Limited
INDEX
Ability
, 12, 15, 24, 142
of adults with disabilities
, 77
hetero-ability
, 234
narratives of
, 17–18
race-ed masculine
, 61–62
of students
, 52
Ableism
, 148–149, 224–225
Academic generational ableism
, 223–225
Accessibility expectations
, 177–179
Active resistance
, 5–6
Activities of daily living (ADLs)
, 78–79, 187
ADA Amendments Act (ADAAA)
, 140
Adaptive services
, 46–47
ADD
, 60, 69–70
Adult children
, 62–63
Adulthood
, 60–63
Affective paradigm
, 217–218
Allies
, 97–103
American Sign Language (ASL)
, 13
Americans with Disabilities Act (ADA)
, 108–109, 110, 140
Disability Discrimination Story
, 142–144
findings
, 141–147
Generation
, 170
methodology
, 141
moral employer and immoral employee story
, 144–147
Antidiscrimination law
, 94, 95
Art therapy
, 127, 131–132
Baker Act
, 88, 207
“Being Disabled in Public: Consequences and Shared Barriers”
, 37–39
Beyond the Miracle Worker: The Remarkable Life of Anne Sullivan Macy and Her Extraordinary Friendship with Helen Keller (2009)
, 16
Biomedical model
, 114–115
as lens
, 108–109
Biomedical narrative
, 124
of disability
, 125
See also Cultural narrative(s)
Black Lives Matter movements
, 265
Black women with dis/abilities (BWD)
, 220, 221
See also People with disabilities (PWD)
Blogs
, 247
Blue Butterfly Productions
, 124, 125, 128, 129, 133
“Born This Way” formula story
, 264
Boston Globe
, 153
Brokers
, 96, 97
Brown vs. Board of Education
, 108–109
Campus inclusion/facilities
, 116
Cancer
, 258–259
Care burden
, 62–63
Caregiving
, 81–82, 84
Centers for Disease Control
, 254
Child(ren)
, 234
deaf, deaf–blind, and identities
, 12–13
disability studies scholarship on Helen Keller
, 16–17
findings
, 19–23
literature analysis
, 12
methodology
, 17–19
narratives, (dis)ability, and interdependence
, 14–15
protective services
, 68
Chronic Fatigue Syndrome (CFS)
, 246, 247, 248, 250–251
Chronic illness
, 140, 247
Chronic non-cancer pain (CNCP)
, 152, 153, 155, 164
social-model-oriented activism
, 165
Chronic pain management
CNCP
, 164–165
institutional narratives of chronic pain
, 156–160
and models of disability
, 154–155
personal narratives of chronic pain
, 160–164
and prescription opioids
, 152–153
role of narrative
, 155–156
social-model-oriented activism
, 165
Citizenship norms
, 62
Class-advantaged same-sex parenting
, 69
Code/coding
, 33
expectations
, 115
prompt dependency
, 115
Cognitive capitalism
, 68
Cognitive meanings
, 2
Cognitive/intellectual disability
, 231–232
College students, applying disability paradigm to test anxiety among
, 44–45
Community Choice Act
, 191–192
Community First Choice option
, 196
Community-based rehabilitation (CBR)
, 29
development approach
, 29
Compulsory able-bodiedness
, 232–233
Concealment
, 69–71
“Conscious choice” process
, 217–218
Contemporary disability scholars
, 61–62
Contested disabilities
, 140, 142
Contested illness, narratives of
, 246–247
analytic strategy
, 248–249
attempts and challenges
of quest narrative
, 256–257
to restitution narrative
, 252–254
challenges to quest narrative
, 258–259
data analysis
, 248–249
experiences of narrative wreckage
, 249–251
learning appreciation
, 257–258
methods
, 247–248
narratives
, 259
reasons for illness
, 251–252
resisting medical advice
, 254–256
sample demographics
, 248
See also Organizational narratives
Contradictory injunctions
, 95
Cory Gardner (R-CO)
, 192
Crip theory
, 2, 232–233, 234
Critical disability studies scholars
, 172
Critical friendships
, 7, 218–219
Critical realism
, 2
Cultural meanings
, 2, 140
Cultural narrative(s)
, 53–54, 55, 108, 133, 155
contents of
, 4–5
of disability
, 4, 124–125, 231–232
in education
, 109
in employment
, 109–110
of family life and parenthood
, 78
of neoliberalism
, 232
resisting current
, 267–269
See also Biomedical narrative
Cultural Stories of Disability and Individual Lives
, 6
Cultural Stories of Disability and Organizations
, 6–7
Cultural Stories of Disability and Resistance
, 7
Cultural Stories of Disability and Social Policies
, 7
Cultural value system of individualism
, 4
Cultural-cognitive interactions of test anxiety
, 47–48
Curtis, Lois
, 191
Day-to-day experiences of family life
, 76–77
Deaf–blind
, 12–13
Deaf community
, 12–13, 15
Deafness
, 13
Deaf studies scholars
, 13
Deficiency narratives
, 4
Deficit ideologies
, 221
Deinstitutionalization movement
, 127, 265
Department of Justice (DOJ)
, 140–141
Civil Rights Division
, 140–141
Department of social services (DSS)
, 68
Dependence
, 62, 63, 64
adult son’s private forms of
, 65
on alcohol and drugs
, 66
See also Independence
Depression
, 69–70
Descriptive codes
, 113, 114–115
“Deserving of Life” narratives
, 265, 266–267, 269
Diagnostic Statistical Manual (DSM)
, 44, 46–47
Dignity
, 221
Disability & Society
, 16–17
Disability
, 1, 8, 12, 14–15, 124–125, 128–129, 141, 142, 147–148, 171–173, 205, 225–226, 235, 265–266
actual experiences
, 5
aesthetic
, 128
approach
, 13
art
, 128
art therapy
, 127
chronic pain and models
, 154–155
competing understandings
, 127–128
cultural narratives
, 4, 124–125
departments
, 94–95, 103–104
disability aesthetic
, 128
disability studies and sociology, scholars in
, 3, 13
disability-centered arts programs
, 126
disability-related research
, 29–30
discrimination for people
, 144
discrimination story
, 142–144
documentation
, 111, 142–144
emerging adults with
, 173–174
fathers of children with
, 77
financial security in context of high cost
, 84
formula stories of
, 95–96
in Global South
, 28
identity
, 55, 262–263
and identity
, 207
and job interview
, 206–207
journals for disability studies
, 16
laws
, 95
Maggie and meaning of being professional with
, 208–209
medical models
, 4
mission
, 102–103
model
, 152
multiple failures of cultural stories
, 5
narratives of
, 12, 17–18, 124
organizational narratives of
, 125–126
outsider art
, 127
paradigm applying to test anxiety among college students
, 44–45
parents of children with
, 76
primary character in cultural stories of
, 5
problem of
, 81
public understandings
, 2–3
scholars
, 5, 262–263
services campus office
, 55
social construction of concept of
, 14–15
in Sri Lanka
, 29–30
studies scholarship on Helen Keller
, 16–17
and therapeutic relationships
, 207–208
Disability Integration Act (DIA)
, 192
Disability managers
, 94–95
as buffer zone
, 97–103
Disability Studies in Education (DSE)
, 216
changes and false beliefs
, 219–220
conceptual, emotional, affective and spiritual framework
, 216–217
emotional, affective, and spiritual paradigm
, 217–218
letting go of learning dis/ability
, 222–223
office confidential
, 223–225
paradigms collide
, 225–227
research design and methods
, 218–219
vocational and academic pathways
, 220–221
Disability Studies Quarterly
, 16–17
Disability Trap, The
, 186
Disabled people
, 1, 2–3, 8, 88
social services for transitioning to adulthood for
, 5
Disabled Sri Lankan women, experiences of
, 28
Disembodied types of people
, 47–48
“Diversity manager” in France
, 100
“Don’t Go Outside: Hidden from Childhood” theme
, 34–35
Education
, 28, 29, 238–239
coach
, 116
cultural narrative in
, 109
history of I/DD in
, 108
Education for all Handicapped Children Act (1975)
, 108–109
Education for All Handicapped Children Education Act (EAHCA)
, 110
Emerging adulthood
, 171–173
Emerging adults with disabilities
, 173–174
Emotion(al)
, 217
codes
, 263, 265
meanings
, 2
paradigm
, 217–218
Employment
cultural narrative in
, 109–110
history of I/DD in
, 108
outcomes for graduates
, 115
policy
, 109
Empowerment
, 29
Environment
, 55
Equal Employment Opportunity Commission (EEOC)
, 140–141
Ethnicities
, 265–266, 274
Ethnographic “go-alongs”
, 174–176
Exclusion
, 114–116
See also Inclusion
Exposure
, 114–115, 117–119
Extended-release, long-acting opioids (ER/LA opioids)
, 156
“Extra-professional characteristics” of jobseekers
, 95
Fair Labor Standards Act
, 110
Familial normativity
, 232
Families
, 16–17
interdependence
, 177
role
, 177–179
Fathers/fathering/fatherhood
analysis process
, 79
of children with disabilities
, 77
data
, 78–79
findings
, 79–87
good father
, 80
heroes of story
, 81–83
method
, 78–79
narrative tensions
, 83–87
plots and characters
, 79–83
scholars
, 77
with serious impairments and life-long care needs
, 78
villains and victims of story
, 80–81
Feminist
methodologies
, 18
researchers
, 76–77
Feminist disability studies (FDS)
, 31
Financial security in context of high cost of disability
, 84
Food and Drug Administration (FDA)
, 152
Formal equality, French notion of
, 95
Formula stories of disability
, 95–96
France
, 94–95
diversity manager in
, 100
jobseekers with disabilities in
, 94
“Fraught and difficult in day-to-day living” process
, 70
French recruitment process
, 100
French republicanism
, 95
Gender
, 24
norms
, 30
in Sri Lanka
, 30
Geographic immobility
, 188
Global South, disability in
, 28
Government-funded programs
, 81
Group homogeneity
, 248
Hashtags
, 268
Health, Education, Labor, & Pensions (HELP)
, 189
Healthcare
, 28
“Healthy disabled person”
, 140
Helen Keller and the Big Storm (Lakin)
, 21–22
Helen Keller: From Darkness to Light (Sugihara)
, 22
Helen Keller: Miracle Child (Peck)
, 20–21
Heroes
, 128–129, 265
Heshusius’s concept
, 225–226
Heteronormative family
, 234
Heteronormative future
, 236–237
High stakes
of higher education
, 48–50
testing
climate
, 45–46
culture in United States
, 45–47
Higher education, internalizing cultural scripts of
, 51–53
Hired psychotherapists
, 98
Home and community-based services (HCBS)
, 187, 191
Medicaid HCBS users and layers of narrative identity
, 188–189
Humanist disability studies
, 62–63
Hyper-focused individualized solutions
, 44
Hyperindividualized solutions
, 45
Identity
, 12–13, 204
communities
, 263, 264–265
disability and
, 207
identity-based groups
, 263–264
identity-constructing resistance narratives
, 264
narrative and identity construction
, 263–265
politics
, 100
Illness
, 159, 247
narratives
, 245–246
reasons for
, 249–259
Impairment
, 8, 88
Inclusion
, 114–115, 116–117
communities
, 29
criteria
, 248
Independence
, 12, 14, 67–69
cultural value of
, 86
production of
, 85
See also Dependence
Independent living
, 170
variable meaning of
, 179–181
“Indifference to difference” cultural importance
, 5
Individual adaptability
, 177–179
Individual education plan (IEP)
, 234
Individual Medicaid PCA
, 193
Individual’s productiveness
, 109
Individualism
, 4
Individuals with Disabilities Education Act (IDEA)
, 108–109, 110, 173
“Institutional Art”
, 127
Institutional narratives
, 110–111, 155, 192–193
analysis
, 159–160
of chronic pain
, 156–160
findings
, 157–159
method
, 156–157
opioids story
benefits
, 159
dangers
, 157–158
See also Personal narratives
Institutional Review Board (IRB)
, 175
approval
, 47
Instrumental activities of daily living (IADLs)
, 187
Intellectual and developmental disability (I/DD)
, 108, 111
in education and employment
, 108
Intelligence quotient (IQ)
, 110
Interaction process
, 14
Interdependence
, 12, 14–15, 23, 171–173
variable meaning of interdependence living
, 179–181
Intersectional disablism model of dis/ability
, 217
Intersectional identity
, 217
Intersectionality theory
, 262
Interview(s)
, 33
transcripts
, 235
Invisible disabilities
, 60, 62, 63
Isolation
, 69–71
Job interview, disability and
, 206–207
Jobseekers
with disabilities in France
, 94
past trajectories
, 97–98
Keller, Helen
disability studies scholarship on
, 16–17
as a “Modern-day Saint”
, 23
Laws
, 95–96
Learning
appreciation
, 257–258
environment
, 45
Learning disability (LD)
, 216, 219
LGBTQ + disabled people
, 267
of color construct narratives
, 5–6
Life course
approach
, 31
theory
, 171–173, 181
Life history interviews
, 175
Life lessons
, 97–98
Lithium
, 72
Livelihood
, 29
Lumping and splitting techniques
, 266–267
Malthusian perspective
, 109
Marginalizing process
, 219
Marriage
, 30
Masculinity in context of care work
, 83–84, 87
Mauldin’s work
, 13
Meaning-making
, 33
Medicaid
, 81, 187
institutional narratives of Medicaid HCBS users
, 189–190
Medicaid HCBS users and layers of narrative identity
, 188–189
methodology
, 189–190
organization of Medicaid services
, 7
PCA
, 186, 188, 192–193, 195
personal narratives of Medicaid HCBS/PAS users
, 193–194
state-by-state organization of Medicaid community-based services
, 5
Medical gaze
, 109
Medical models of disability
, 4, 31, 54, 96
Medical narrative of disability
, 2
Medically contested illnesses
, 246
Mental health
counseling education
, 205, 209
counselor
, 211–212
Mindset exercises
, 44–45
Minority approach
, 13
“Miracle Worker, The”
, 19
Sullivan as
, 19–20
Misconceptions
, 129–131
Miss Spitfire: Reaching Helen Keller (Miller)
, 17–18
Mobility impairments
, 176
accessibility expectations and individual adaptability
, 177–179
data analysis
, 176
data collection
, 175–176
disability
, 171–173
emerging adulthood
, 171–173
emerging adults with disabilities
, 173–174
ethnographic “Go-alongs”
, 175–176
findings
, 177–181
inaccessible housing plagues
, 181–182
interdependence
, 171–173
life course theory
, 171–173
life histories
, 175
methods
, 174–177
sample characteristics
, 176–177
variable meaning of interdependence and independent living
, 179–181
Money Follows the Person (MFP)
, 196
“Moral wages”
, 125–126
Mothering/motherhood
, 76–77
experience
, 233
independence and overcoming
, 67–69
isolation and concealment
, 69–71
methods
, 61
precariously normal adult sons and daughters in age of inequality
, 60
private and public dependency
, 63–67
queerly
, 236–239
Myths
, 129–131
Narrative(s)
, 1, 2, 3, 7, 14–15, 32, 61, 140, 259
of ability and disability
, 17–18
analysis
, 13, 44, 128–129
changing
, 110–111
desiring to protect in context of helplessness
, 85–86
of disability
, 2, 12, 124
of disability rights progress
, 195
evoking masculinity in context of care work
, 83–84
finding new “normal” in context of unexpected
, 86–87
heteronormative future
, 236–237
of identities
, 94
and identity construction
, 263–265
importance
, 1–2
inquiry
, 216, 218, 219
maximizing potential in context of realistic expectations
, 84–85
meaning
, 2
meaning making
, 14, 140
methodology
, 218
methods
, 235–236
mothering queerly
, 237–239
of pride
, 264–265
productions of meaning
, 14
providing financial security in context of high cost of disability
, 84
resources
, 61
role
, 155–156
studying
, 233–234
tensions
, 83–87
themes in
, 33
turn
, 1–2
types
, 236
virtues
, 165
wreckage experiences
, 249–251
National Council on Independent Living (NCIL)
, 192
National Geographic Kids Series: Helen Keller (Jazynka)
, 19–20
Neoliberal model of inclusion
, 232–233
Neoliberalism
, 232, 233
No Child Left Behind Act of 2001 (NCLB)
, 45–46
Normalcy, conceptualizations of
, 12, 232–233
Normality
, 60
traditional understandings of
, 86
Norwegian Deaf people, study of
, 13
Objectivity
, 1–2
Olmstead decision
, 187
Olmstead v. LC and EW Supreme Court decision
, 190, 191
Opioid(s)
chronic pain and prescription
, 152–153
therapy
, 162
Oppression
, 14–15
Organizational missteps
, 53–54
Organizational narratives
, 124, 155
Blue Butterfly’s approach
, 133
competing understandings of disability-centered art
, 127–128
cultural narratives of disability
, 124–125
data collection and analysis
, 128–129
of disability
, 125–126
findings
, 96–103, 129–133
formula stories of disability
, 95–96
French context
, 94–95
of identities
, 94
methods
, 96
myths, misconceptions, and stigma
, 129–131
research methods
, 128–129
research site
, 128
victimization
, 131–132
working with heroes towards common goal
, 132–133
See also Contested illness, narratives of
“Our Lives Matter/Deserving of Life” narrative
, 264, 267, 271
Outsider art
, 127
“Paradigm-as-metaphor” concept
, 225, 227
Parenthood
, 77
cultural narratives
, 78
Parenting
, 77
Parents of children with disabilities
, 76
Pattern-finding
, 33
People with disabilities (PWD)
, 88, 108, 132–133
early employment
, 110
exclusion and segregation
, 108–109
See also Women with disabilities (WWDs)
Personal care attendant (PCA)
, 186
Personal meaning
, 2
Personal narratives
, 54, 126, 155, 233–234
analysis
, 164
barriers to treatment
, 163
of chronic pain
, 160–164
encounters with stigma
, 162
findings
, 161–163
of Medicaid HCBS/PAS users
, 193–194
method
, 160–161
impact of pain
, 161
of test anxiety
, 44
treatment experiences
, 161–162
See also Institutional narratives; Quest narrative
Personal stories
, 88, 245–246
Personal tragedy
, 96, 124
Persons with disabilities (PWDs)
, 28, 29
in Sri Lanka
, 29–30
See also Women with disabilities (WWDs)
Physical therapy
, 221
Policy
, 95–96
changes
, 110–111
narratives
, 186
Popular individual empowerment discourses
, 29
Post program employment outcomes
, 112
Post-colonial political culture
, 29
Posters
, 267–268
Pre-kindergarten through twelfth grade education (P-12 education)
, 217
Pride narrative
, 265, 266–267, 269
“Pride/community and self-love” narrative
, 264, 267, 269
“Pride” narrative
, 264–265
Private dependency
, 63–67
Professional with disability
, 208–209
Psychological services
, 55
Public dependency
, 63–67
Public policy
, 155
decisions
, 140
Public spaces
, 30
Public storytelling
, 61, 68
Public understandings of disability
, 2–3
Queer disabled Tumblr users
data analysis
, 266–267
data collection
, 266
methodology
, 265–267
narrative and identity construction
, 263–265
resistance narratives
, 264–265
Tumblr as apparatus to narrate selves into existence
, 267–273
“Queer nature of disability”
, 231–232
Queer/crip theory
, 234
Quest narrative
, 247, 256
attempts and challenges of
, 256–257
challenges to
, 258–259
See also Personal narratives; Resistance narratives
Quota for workers with disabilities
, 94
Races
, 265–266
Racialized minority
, 100
Re-blogs
, 268–271
Reconnaissance de Qualité de Travailleur Handicapé (RQTH)
, 95, 102
Recruitment
, 47
flyers
, 47
new recruitment channels
, 94–95
Reflexive cultural and personal narratives
, 48–50
Reflexive narrative analysis
, 47–48
Rehabilitation Act (1973)
, 108–109, 110
Relaxation techniques
, 44–45
Research in Social Science and Disability
, 1
Resistance, complexities of
, 22–23
Resistance narratives
, 263, 264–265
deployment
, 262
employment
, 263–264
See also Quest narrative
Resisting current cultural narratives
, 267–269
Response to intervention (RTI)
, 110
Restitution narrative, attempts and challenges to
, 252–254
Returning during transition
, 177, 179
Rights’ Defender
, 95
Rooting before transition
, 177, 179
Safe spaces
, 97–103
Scandinavian Journal of Disability and Research
, 16–17
Scholarly discourses
, 2
Scholars of disability
, 61
Scholarship programs for students
, 98, 99
School(s)
, 16–17
success or failure
, 55
Science, technology, engineering, and math (STEM)
, 44
Self and social relationships, insults to
, 50–51
Self-advocacy of individuals with disabilities
, 205
Self-determination of individuals with disabilities
, 205
Self-study in teacher education methodology
, 218
Sense of belonging
, 119
“Skills building”
, 232
Social
, 29
circulating formula stories
, 61
of disability
, 31, 96
media
, 262, 265
model
, 152
narrative
, 133
narrative of disability
, 2, 125
policy
, 5, 7
scientists
, 1–2
social-behavioral-emotional disorders
, 5, 60
social-model-oriented activism
, 165
support
, 82
welfare programs
, 174
Social anxiety disorder (SAD)
, 44
Social institutions
, 16–17
Social media
, 262, 265
Socio-economic status
, 79
Socio-historical models of disability
, 231–232
Socioeconomic privilege
, 79
Sociological generalizations
, 31–32
Sociopolitical model
, 114–115
Specialness
, 232–233
Spiritual paradigm
, 217–218
Spirituality, defined
, 217–218
Sri Lanka
, 28
attitudes
, 29–30
disability in
, 29–30
experiences of WWDs in
, 30
population
, 28–29
PWDs in
, 29–30
Stigma
, 129–131, 133
Stories
, 14, 140, 204–212
betting on the long shot
, 210
counseling in a closet
, 208
disability and identity
, 207
disability and job interview
, 206–207
disability and therapeutic relationships
, 207–208
entry into counseling
, 205–206
failed relationship
, 207
jersey and learning the limits of empathy
, 208
learning to be batman
, 206
Maggie and meaning of being professional with disability
, 208–209
Matt and lesson of authenticity
, 209
Mindy and lesson of disability as counseling resource
, 209–210
narrative analysis
, 212
prologue
, 205
superhero character
, 211–212
Storytelling
, 264–265
Sub-codes
, 113, 114–115
Success, defined
, 13
“Super crip” narrative
, 124, 125
Supplemental Security Income (SSI)
, 66–67, 72
Symbolic codes
, 263
System of care (SOC)
, 206
Tamil community leaders
, 40
Tamil women in study
, 32
Target population
, 140, 154–155
Tax Equity and Fiscal Responsibility Act of 1982
, 190–191
Test anxiety
, 44
applying disability paradigm to test anxiety among college students
, 44–45
consequences
, 44, 50–51
increasing environmental demands
, 45–47
limitations
, 56
methods
, 47
results and analysis
, 47–54
sample characteristics
, 48
Theatre eXceptional program
, 128, 129–130, 133
Thematic/themes
, 33
analysis
, 33
code generation
, 249
Therapeutic relationships, disability and
, 207–208
Thinking, cultural ways of
, 263
Transition and Postsecondary Programs for Students with Intellectual Disabilities (TPSID)
, 111–112
Transition to adulthood
, 170
Tumblr
, 266
as apparatus to narrate selves into existence
, 267–273
resisting current cultural narratives
, 267–269
social media platform
, 262
tangled narratives
, 272–273
two prominent narratives entwined
, 269–272
UN Convention on Rights of Persons with Disabilities
, 29
“Unimaginable harassment”
, 143
United Nations (UN)
, 28
University of South Florida Institutional Review Board
, 88
US Department of Education
, 111
Value
of individual
, 109
system
, 69–70
value-engaged objective of disability studies
, 61
Victim
, 128–129, 265
identity
, 132
Victimhood
, 131
Victimization
, 131–132
Villain
, 128–129, 265
in quest for accessible art
, 129–131
recasting
, 134
Virginia Commonwealth University ACE-IT in college (VCU ACE-IT in college)
, 117–118
biomedical model as lens
, 108–109
cultural narrative in education
, 109
cultural narrative in employment
, 109–110
data analysis
, 113–114
data collection
, 112
history of I/DD in education and employment
, 108
limitations and next steps
, 119
methods
, 112–114
policy changes and changing narratives
, 110–111
research design
, 112
results
, 114–115
Virtual ethnography
, 265–266
Volunteering information
, 175
“Water pump moment”, story of
, 19–22
Welfare
, 28
Western system of governance
, 28
“Who Will Take Care of You?” The Dangerous Path of Love and Marriage
, 35–37
“Whole cloth” narrative
, 79
Wilson, Elaine
, 191
Women in Sri Lankan communities
, 30
Women with disabilities (WWDs)
, 28
experiences in Sri Lanka
, 30
semi-structured interviews to solicit narratives from
, 32
voices
, 31
See also Persons with disabilities (PWDs)
Women’s experiences of disability and CBR in Sri Lanka
data analysis
, 33
data collection
, 32–33
disability
and gender in Sri Lanka
, 30
in Global South and Sri Lanka
, 29–30
findings
, 33–39
methods
, 32–33
theoretical framework
, 31–32
World Health Organization (WHO)
, 29
- Prelims
- Introduction Exploring Narrative as a Social Science Framework on Disability and Disabled People
- Part I Cultural Stories of Disability and Individual Lives
- Chapter 1 Reframing the Story of Helen Keller and Anne Sullivan: Resisting (Dis)ability Stereotypes through an Analysis of Children’s Literature
- Chapter 2 “It’s Not That Way You Know, She Has a Good Future”: Women’s Experiences of Disability and Community-based Rehabilitation in Sri Lanka
- Chapter 3 Test Anxiety: Participation and Exclusion beyond the Institution
- Chapter 4 Narratives of Care and Citizenship: Mothering “Precariously Normal” Adult Sons and Daughters in an Age of Inequality
- Chapter 5 “More than a Parent, You’re a Caregiver”: Narratives of Fatherhood in Families of Adult Sons and Daughters with Life-long Disabilities
- Part II Cultural Stories of Disability and Organizations
- Chapter 6 “You Won’t Tell That You Have Schizophrenia, Right? You Should Say You Have a Small Depression”: Organizational Narratives of “Adjusted” Workers with Disabilities and the Rhetoric of Reassurance in France
- Chapter 7 “I Want to Go Places on My Own”: A Case-study of Virginia Commonwealth University ACE-IT in College
- Chapter 8 More than Therapy: Conformity and Resistance in an Organizational Narrative of Disability and the Performing Arts
- Part III Cultural Stories of Disability and Social Policies
- Chapter 9 Narrative Productions of Problems and People in the Americans with Disabilities Amendment Act
- Chapter 10 Institutional and Personal Narratives of Chronic Pain Management: Interrogating the Medical and Social Models of Disability
- Chapter 11 Stuck in Transition with You: Variable Pathways to In(ter)dependence for Emerging Adult Men with Mobility Impairments
- Chapter 12 Conflicting Narratives of Corporeal Citizenship: Medicaid Personal Care Attendant (PCA) Policy and Program Users’ Experiences of Cross-state Moves
- Part IV Cultural Stories of Disability and Resistance
- Chapter 13 Neither Victim nor Superhero: Reflections on Disability and Mental Health Counseling
- Chapter 14 Self-study of Intersectional and Emotional Narratives: Narrative Inquiry, Disability Studies in Education, and Praxis in Social Science Research
- Chapter 15 Neoliberalism and the Fight for the Child: Narratives of Queer Mothering
- Chapter 16 Sick and Tired: Narratives of Contested Illness in Chronic Fatigue Syndrome Blogs
- Chapter 17 “We Love Each Other into Meaning”: Queer Disabled Tumblr Users Constructing Identity Narratives through Love and Anger
- Index