Prelims

Half Title Page

Reconsidering Patient Centred Care

Title Page

Reconsidering Patient Centred Care: Between Autonomy and Abandonment

Alison Pilnick

University of Nottingham, UK

United Kingdom – North America – Japan – India – Malaysia – China

Copyright Page

Emerald Publishing Limited

Howard House, Wagon Lane, Bingley BD16 1WA, UK

First edition 2022

Copyright © 2022 Alison Pilnick.

Published under exclusive licence by Emerald Publishing Limited.

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British Library Cataloguing in Publication Data

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ISBN: 978-1-80071-744-2 (Print)

ISBN: 978-1-80071-743-5 (Online)

ISBN: 978-1-80071-745-9 (Epub)

Dedication

For my parents, Irene and Mike, who – amongst so many other things – took me to the library.

List of Abbreviations

CA

Conversation analysis

ESRC

Economic and Social Research Council

HCP

Healthcare professional

NHS

National Health Service

NICE

National Institute for Health and Care Excellence

NIHR

National Institute for Health Research

PCC

Patient centred care

PCM

Patient centred medicine

PLWD

People living with dementia

WMO

World Medical Association

WHO

World Health Organisation

About the Author

Alison Pilnick is Professor of Language, Medicine and Society in the School of Sociology and Social Policy. She has been researching communication in healthcare for over 25 years, with the aim of improving the experiences of patients and developing and informing training programmes for healthcare professionals. This research has been funded by bodies including ESRC, NIHR, UK Department of Health, The British Academy, the Swiss National Science Foundation and the General Research Fund of Hong Kong. All of Alison's work is underpinned by a broader desire to use sociological expertise to improve healthcare policy and practice. She was elected a Fellow of the Academy of Social Sciences in 2015 in recognition of her work in this area.

Acknowledgements

Many people have contributed either directly or indirectly to the work that is contained here. The analysis for and writing of this book was funded by a British Academy Senior Research Fellowship (SRF 20/200100): ‘Between autonomy and abandonment: reconsidering patient centred care’. I am grateful both for the Academy's financial support and the space this has afforded me to finally engage substantively with an issue that I have been skating around the periphery of for a number of years, in the gaps between other projects. The first seeds of this book were planted in discussions with Robert Dingwall, who was originally my PhD supervisor, and in some of the work we have done together in more recent years. Becoming a member of the Academy of Medical Science's FLIER programme at the end of 2019 provided further impetus, and I thank the Academy and especially my fellow FLIERS for their enthusiastic, sometimes constructively challenging but always supportive engagement with this work.

This book draws on data collected for a number of projects conducted over the last 25 years, and in collecting and analysing these data for other purposes I have had the benefit of working with a number of excellent colleagues and collaborators. These include Anssi Peräkylä, Becca O'Brien, Bregje de Kok, Christian Heath, David Greatbatch, Elizabeth Murphy, Jennifer Clegg, Jon Hindmarsh, Kathryn Almack, Eric Laurier, Olga Zayts, Rebecca Allwood, Robert Dingwall, Rowan Harwood, Sarah Goldberg, Sue Widdicombe, Suzanne Beeke, Tim Coleman and Virginia Teas Gill. I have also been fortunate enough to discuss and debate some of the data reproduced in this book with a number of talented PhD students and postdoctoral researchers conducting their own research into healthcare delivery across a range of local and international contexts, including: Emma Rowley, Gregory Hollin, Helena Webb, Joe Webb, Melanie Pearce, Rachael Drewery, Rachael Finn, Ruth Parry, Sarah Atkins, Veronika Schoeb. All of these colleagues have helped me to develop and clarify my ideas, but the responsibility for any errors or weaknesses in the analysis presented here is of course mine.

My experiences of the COVID-19 pandemic are those which are shared with many people, including the emotional impact of personal loss and the practical impact of prolonged homeschooling. I am therefore grateful for the understanding of colleagues at Emerald, initially Jen McCall and latterly Kimberley Chadwick, who have patiently adjusted deadlines and rejigged production schedules in response. I hope that my family are glad to see me finally emerge from the spare room with the finished manuscript, and thank them for their ongoing love and support.