Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience
ISSN: 1476-9018
Article publication date: 2 February 2022
Issue publication date: 12 April 2022
Abstract
Purpose
The involvement of patients or members of the public within public health, health and social care and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment).
Design/methodology/approach
A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007–2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services.
Findings
Synthesis of literature and workshop data was undertaken. Main themes addressed “What works” in relation to: building infrastructures and organising involvement of people with lived experience; what people want to be involved in; widening participation and sustaining involvement and respecting people with lived experience.
Practical implications
Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care and addiction services provides potentially useful examples of good practice which may be adopted by gambling services.
Originality/value
The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rights-based/empowerment-based approaches.
Keywords
Acknowledgements
The authors thank participants in the study workshop for their contributions to the discussions.
Funding: This study was funded by GambleAware. The views expressed in this paper are those of the authors alone.
Citation
Norrie, C., Bramley, S., Lipman, V. and Manthorpe, J. (2022), "Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience", Journal of Integrated Care, Vol. 30 No. 2, pp. 189-202. https://doi.org/10.1108/JICA-06-2021-0030
Publisher
:Emerald Publishing Limited
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