Involving patients in research ‐ Setting up a service users’ advisory group

Abstract

Looks at some of the issues raised by patients’ involvment in the research process. Uses the example of a service users’ advisory group established as part of a diabetes service evaluation in the north of England. Key conclusions were: a precise role for the group should be specified at the outset; genuine user involvement is needed; wide and accurate representation of all relevant groups in society is essential; and, researchers must approach users with open minds with a view to shared decision making rather than control.

Citation

Rhodes, P., Nocon, A., Wright, J. and Harrison, S. (2001), "Involving patients in research ‐ Setting up a service users’ advisory group", Journal of Management in Medicine, Vol. 15 No. 2, pp. 167-171. https://doi.org/10.1108/02689230110394679