From discovery to recovery and beyond: The role of voluntary health sector organizations in the lives of women with breast cancer

Abstract

Purpose – The goal of this chapter is to understand the role of nonprofit voluntary health organizations (VHOs) in the lives of Canadian women coping with breast cancer.

Methodology – Through qualitative interviews with breast cancer survivors and records of VHOs active in this field, we assess the level and nature of their interactions and impact on women's quality of life.

Findings – Our findings suggest that at the micro-level, VHOs are venues for women to receive auxiliary services such as information, counseling, and support that complement the mainstream health care provision. While VHO services empower women as health care consumers, we show that they also serve as venues for women to reciprocate by volunteering. This process of reciprocity helps women cope with their own healing and allows them to be not only consumers but also producers of health services.

Research limitations – The non-random nature and the small sample size make our findings not easily generalizable to the larger population of breast cancer survivors; rather they are indicative of the experiences of Canadian women in one large urban metropolitan area.

Value of the chapter – We demonstrate the role of VHOs as venues of health consumerism as well as places for consumers to become involved in the production of services by volunteering.

Citation

Greenspan, I. and Handy, F. (2008), "From discovery to recovery and beyond: The role of voluntary health sector organizations in the lives of women with breast cancer", Chambré, S.M. and Goldner, M. (Ed.) Patients, Consumers and Civil Society (Advances in Medical Sociology, Vol. 10), Emerald Group Publishing Limited, Leeds, pp. 151-176. https://doi.org/10.1016/S1057-6290(08)10008-0